The Life of Me, Smile Magee :)

Just a little 🎤 drop . Knowledge bomb . For my Last  Rare Disease Day content ( Today 😂 ..  let’s face it ., my life is Rare disease day.  ). I thought I’d share with you a little about the rare diseases I have.  ( and these are not all my diseases. Just the rare ones .   5 diseases i have won’t be mentioned because they aren’t rare ) If you have any questions about them. Comment below!  And the info is accurate ( to my knowledge. But I’m in a crap ton of pain from the dance, it’s 1:43 am and I’m wired on the caffeine it took to get me through the dance.. so don’t judge me to hard. To get all “sciencey “ about it  UCTD -  Undifferentiated connective tissue disease (UCTD) is a term suggested by LeRoy 30 years ago to denote autoimmune disease that does not meet criteria for established illnesses such as systemic lupus erythematosus, scleroderma, dermatomyositis, Sjogren’s syndrome, vasculitis, or rheumatoid arthritis. ( sorce rheumatology adviser)  So basically you

I just couldn’t do it. I couldn’t go see his parents. My church was having an activity where we were visiting the parents of a member of our ward .. a friend of mine.. who died not even 5 months prior to due to complications of Lyme Disease. And just thinking of seeing his parents.  Made my heart stop and my hands shake. Because I felt Guilty. And I hated myself for how guilty I felt. Because he was in a good spot when it came to his health.  He had a girlfriend who he adored and had fallen in love with. His life was seemingly coming together. But after months of a constant health decline. I was alive,  and he wasn’t. And because of that.. I Couldn’t even imagine looking his parents in the eyes. It’s not like, I wanted to die. That a part of me was jumping up and down , demanding my turn with the reaper. It’s the exact opposite.  In my opinion the majority of those who have life threatening diseases. Spend 90% of our time ,  In a full blown sprint.