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Showing posts from November, 2016

Prognosis Unknown

  Some moments in life you are litterally slapped across the face with reality. This week, for some reason I can't stop thinking about one of those moments. It was like a couple years  ago, but I was in the thick of my IV days  so the details are a bit fuzzy. But It was during an appointment with my GP,  and there was a crapload of paperwork we needed him to do. So I'm pretty sure It was  another attempt at Repealing my insurance, so I could go to the Mayo Clinic,  so we could hopefully finally diagnose the giant medical mystery which is my body. I was watching him fill out some paper work. I saw him write "   Prognosis.. Unknown" I  had already cheated death a couple of times before that appointment.  But for some reason during this appointment, after seeing those words written,  it finally hit me.., I finally truly realized   That whatever this disease I'm fighting could kill me.  And that harsh reality hit me like a ton of bricks.  ( To me the scariest part of

To Nurses everywhere : Thank You ❤️

During my time at the Mayo Clinic, I would always pass a sign that said, " To our patients, mayo is another word for hope."  Some days I was honestly convinced Mayo was another word for Hell. During one of my worst days there, I went to the Ambulatory infusion center to get my IV, and lucky enough I got one of my favorite nurses. She greeted me with a HUGE smile, and said, "Hey Taylor! I sure have missed you!"  (She was convinced I looked like Taylor Swift, so since the day I met her she always referred to me as  Taylor)  We talked as she put in my IV. I poured my heart to her about how crappy my day had been, and she came back and talked to me whenever she had a break.  My IV's typically ran up to 4 hours. couple hours in, she let me know when she was leaving for her lunch break. when she came back, she handed me a Kit-Kat and said, " I know you don't have any dietary restrictions,  so when I saw this candy bar I thought it might make your day! Remembe