The Life of Me, Smile Magee :)

“ Well I better start planning my funeral “ I said aloud to my mom in a “joking “ matter    but was pierced with how real that statement felt after    we both sat through what felt like another failed appointment with my immunologist.   I understood that I was .. And well am a “hard case . “Pretty severe CVID ( along with a plethora of other health issues ). And deathly allergic to IVIG .. aka the one treatment I absolutely need to keep me alive .  But after another stint in the ICU , after another severe reaction to   the treatment I received  All he had to offer was nervous laughter and the continuous statement of  “ I don’t know what to do with you “ “ I don’t know what to do next “ “ I just don’t know “ I wanted to leave that appointment with a game plan ,    and all I left with was anxiety .  After every appointment with him I had felt pretty hopeless But this was a whole new level. My IG levels were plummeting ....