The Life of Me, Smile Magee :)

To you That picture may just look like I forgot my make up today. . But this pic actually shows a pretty momentous moment in my life :)!  I have never been able to fully turn my neck . It usually gets almost  half of the distance a normal ears on neck can turn.  As you all know 2 days ago I had a Spinal tap, were they discovered I have  excess  spinal fluid. And I started the treatment for it today.  Tonight as I was watching Americas next top model I mimicked a neck movement Tyra did. Then my mom in shock stated " Magee YOU turned your neck ALL the way !!"  Tears of joy streamed down my face as I realized I was looking at the timer directly behind me .   Whenever I have sat in this spot I have had to move my whole body to see that timer.  During plays, I have had to readjust movements because I could not move my neck the way the director wanted me to.  During class. I always had to turn my body completely around t...

Looking at me would you guess my story? That I live in daily pain, that my biggest struggle in life is my health?  Would you be the one to look at me with a repulsed look, when I have to use a wheelchair because my joints just aren't letting me move that day?  Each day we judge people by appearance alone.. We look at the cover and decide whether or not we are going read the book, or treat the book like it wasn't even worth the glance at the cover.  I didn't realize, how true the old saying " you can't judge a book by its cover" is until moments in my life  I have become that book. Those situations have honestly made me better instead of bitter. By being judged, in sometimes very funny situations. It's has helped me learn how I should treat others. Here Are just a couple of my stories on this topic.  As You know physical pain has always been a part of my life. But it my 7th grade year everything changed.. My mark of...

 Before a dance most 19 -20 something's biggest worry before they go to a dance, is what outfit they are going to wear.. My biggest worry was making sure I don't faint do to a possible increase in inter-cranial pressure!  Let me give you  a little  back story.  As you all most likely know the latest bodily mystery my doctors are trying to solve is why I can't see out of half of my right eye.. They know my very swollen optic nerve is causing the lack of vision. But it's yet to be discovered what is causing the very swollen optic nerve. My eye doctor told me to look out for and text him if I experience anything like , eye pain, more vision loss, or neck pain near my hairline.  And sure enough on Thursday I began to feel an ache on that spot, which on Friday evolved to this pain that I can only describe as being like severe whiplash.  I sent a text to my eye doctor, ( hoping and praying this pain wasn't related to the eye thing because I had ...

For my first blog post ( yay! :D )  I'm going to throw it way back in Smile Magee History to when I was 8 years old and discovered that I wasn't like every other kid. I honestly don't remember a day when I wasn't in pain. For as long as I can remember Parts of my body always hurt.  I knew that since I was always super tall for my age, the dr told my parents that as I stopped growing taller. My muscles would finally catch up me and I would end up being a bit less spastic, and for example be  able to finally catch a ball when it was thrown to me . So I thought that  possibly  as I grew older, and as my muscles caught up with my height, that the pain just might go away. I have to admit  A huge part of me thought since my body always hurt, mabey everyone else's bodies hurt to.  In second grade I learned that wasn't the case...  It was a picture perfect spring day. I was in an elementary PE class that was accurately named named "fit kids" ...