Skip to main content

An Ode to 2019

2019 was the year everything changed.

I rang off the year with a brand new blood disorder.

People I thought would be in my life forever became strangers.

People who I never thought would be important in my life, became like family. 

My grandpa who for most of my life lived 5 minutes away .
Moved 3 hours away.

Days that were spent with Netflix in the background to cover a deafening silence.

We’re now filled with screams, giggles, and Kids TV 
Leaving me to wonder if I remembered what silence actually sounded like. 

I thought my family would never again live anywhere close to eachother. 

But somehow we ended up crossing the continent.
Living in the same state.
Being closer than we have been in so many ways 
And being able to be together for Christmas and my Birthday.


In 2019, I lost a lot of my health.
Between millions of appointments and thousands of medical test.

( Counting end of December 2018 .) 
I had 4 inpatient admissions.
Each basically lasting a week or more.
And 1 ICU stay. 
And had countless moments were I wondered “ Will I even make it to see the new year?”

In 2019 I was constantly remembered that I am not in charge of my health. 

No matter how well I follow doctors instructions, how healthy of food I eat, how hard I try. 

I am not in charge of my health.
I am not in charge at all.

God is. 

In 2018 I decided that My New Years resolution for 2019  was to   “  Treat myself like someone I love “ .

But in 2019. 
I learned that if you trust and follow God,  you will learn that your life, and the person you are, is worth loving. 

In 2018, I was scared.
Scared of my body,  scared of the future. 
Scared  to be a failure, scared to be a disappointment to others.
scared that people only liked me because of  my illness.
Scared, that I wasn’t sharing my story Right 
Guilty because I was still so scared, even though God has given me so much. 


And in 2019..  I’m still scared.
But now I know. It’s ok to be afraid.
Because courage isn’t the absence of fear.
It’s the strength to move forward despite of it.
And having fear doesn’t mean you don’t have faith, it doesn’t mean you aren’t grateful.

It means your human.

And that fear,  and the anger and tears that come with it,  are sometimes the only thing that can bring you to your knees,  and have moments where you truly get to know the majesty and compassion of God 


In 2019.

I technically got my first job.
I got multiple articles published on multiple sites.
I became a regular vlogger.
I had the best day of my life, and was able to make life long goals and promises with God when I went through the temple. 
I had endless hours full of laughter, and with my sister made the smallest moments into an adventure.
I learned how to cook a meal and not give someone food poisoning. 

I survived what I was sure would kill me.

I lost my health. 
But I found myself.

And as I head into 2020.
With a Twinkie in my eye, and a limp in my step 
( litterally this limp  isn’t getting better with The prednisone. I think this tumor in my leg might be a problem 😅
Surrounded by people I love. 

My only goal for 2020 is to 
“Persist”
To move forward . Despite how hard or nearly impossible it seems.

To chase new and old passions,  
To never give up on a better health and quality for life.

To be kind to everyone, most definitely including myself.

To continue in faith, even when the world seems dark.


And  To not get Caught up in the future, and strive to make the best, out of each day I’m given.

Tomorrow isn’t promised.
I can’t look at you in the face, and say I’ll be here for the first day of 2021. 
But you can’t say that either.

I promise you. That no matter what this year . Heck, no matter what joy, miracles, pain or heartache this new decade may bring.  I’m going to experience every moment, every emotion 
And fully experience each and every today ❤️




Make it a great new year, 
And always #smileon🐷

Comments

Popular posts from this blog

Hurricanes and rainbows- An Ode to 2016

  I've heard it said that some of the prettiest rainbows you will ever see, will be after a hurricane has happened. That statement for me perfectly sums up my 2016  My New Years resolution for 2016 was literally " don't die"  So the storm was already pounding down hard. But During 2016 there were days were I could feel myself fading away, and would pray with all my Might that I could live another day. And for the first time in my life. In 2016 There were days that I would pray for my life to end because I just couldn't take being so sick anymore. During 2016 the storm literally became so strong, that it almost washed me away.  But as promised, there is always a rainbow after every storm. Angels were sent my way during 2016. When I wanted to die, and I was crying harder than I ever had before in a tiny hospital chapel. Heavenly Father showed me that there was so so much to live for. During 3 of the hardest months of my life.  Where I was tho

Smile Magee History... When I discovered I wasn't like every other kid

For my first blog post ( yay! :D )  I'm going to throw it way back in Smile Magee History to when I was 8 years old and discovered that I wasn't like every other kid. I honestly don't remember a day when I wasn't in pain. For as long as I can remember Parts of my body always hurt.  I knew that since I was always super tall for my age, the dr told my parents that as I stopped growing taller. My muscles would finally catch up me and I would end up being a bit less spastic, and for example be  able to finally catch a ball when it was thrown to me . So I thought that  possibly  as I grew older, and as my muscles caught up with my height, that the pain just might go away. I have to admit  A huge part of me thought since my body always hurt, mabey everyone else's bodies hurt to.  In second grade I learned that wasn't the case...  It was a picture perfect spring day. I was in an elementary PE class that was accurately named named "fit kids" Our

Dear future husband: From a girl with chronic illness

I saw a blog that was a girls letter to her future husband. I honestly i just couldn't relate to it. So I decided to get real tonight and write my own version of it. I hope you can relate. And I hope it reminds you that you deserve true love. Someone who holds on to his end of in sickness in health. Who will love you for better for worse and for eternity. Fight for your fairytale and smile on.  Dear future husband : I'm so excited for you. I pray for you often. But in all honesty I fear you. I fear you won't be able to handle " all this". That you will love the lanky outgoing girl with a bright smile. But you won't be able to handle this monster of an invisible illness that I've carried with me most of my life.. I fear that you will love me at my best. But not to be able to handle me at my worst, and believe me there are going to be a lot of medical worst.  Some of the easier times will be hours  spent in Hospitals and Drs offices. There will be ti