Skip to main content

Dear August. From a girl in her 20”s who is to sick to go to school

Dear August,


Here we are again.

I nearly forgot about your existence.

And then

Your arrival looms over me like a dark cloud.

When back-to-school commercials start infecting the television

And pictures of yellow school busses, and happy healthy children are plastered all over every store.


I know that just days after you arrive everyone’s world will be out of “pause”

And mine still will be.

While the bright-eyed college kids I dream of being enter their dorms, prepared to unleash their potential to the world.

I will continue to enter doctors’ offices.

I will continue to fight a war with my health that may never end.


I will be in the exact same place I was four years ago

Where I felt I literally needed to put my job description on Facebook as “trying not to die.”


Because after you come, August,

People will stare, like I’ve grown a third head.

Like no 21-year-old belongs in a non-college town.

And continually ask me “how school is going.”

And when I smile and say “I’m not in school” they will ask me how work is going.

And I will have to smile, and pretend it doesn’t kill me inside when I say, “Oh, well, I’m currently working through some health issues. And unable to do work or school right now. But I hope that changes!”


And then they will smile at me with sad eyes because no one truly knows how to respond to that sad truth.



Dear August,

You bring out the worst in me.

You bring out every insecurity.

Because you remind me that the majority of my life is vastly out of my control.

That no matter how badly I want to be in school,

No matter how loudly my heart screams for freedom and independence,


My illnesses are the puppeteer.

Pulling every physical string.

No matter how much I hate it.

They are in charge.

And I have to bend to their will.

And when you come, and everyone moves forward into new possibilities,

While my friends experience romance, careers, schooling, internships, independence, and excitement,

I’ll still be waking the same tightrope.

Where one slip could lead to my demise.



August, you remind me that life isn’t fair.

And never will be.

I hope that one day, things will improve.

And you won’t have this affect on me.

But for now, I’ll just grin and bear your presence.

And hope September comes quickly.


Sincerely,

A spoonie

Comments

Popular posts from this blog

Smile Magee History... When I discovered I wasn't like every other kid

For my first blog post ( yay! :D )  I'm going to throw it way back in Smile Magee History to when I was 8 years old and discovered that I wasn't like every other kid. I honestly don't remember a day when I wasn't in pain. For as long as I can remember Parts of my body always hurt.  I knew that since I was always super tall for my age, the dr told my parents that as I stopped growing taller. My muscles would finally catch up me and I would end up being a bit less spastic, and for example be  able to finally catch a ball when it was thrown to me . So I thought that  possibly  as I grew older, and as my muscles caught up with my height, that the pain just might go away. I have to admit  A huge part of me thought since my body always hurt, mabey everyone else's bodies hurt to.  In second grade I learned that wasn't the case...  It was a picture perfect spring day. I was in an elementary PE class that was accurately named named "fit kids" Our

Hurricanes and rainbows- An Ode to 2016

  I've heard it said that some of the prettiest rainbows you will ever see, will be after a hurricane has happened. That statement for me perfectly sums up my 2016  My New Years resolution for 2016 was literally " don't die"  So the storm was already pounding down hard. But During 2016 there were days were I could feel myself fading away, and would pray with all my Might that I could live another day. And for the first time in my life. In 2016 There were days that I would pray for my life to end because I just couldn't take being so sick anymore. During 2016 the storm literally became so strong, that it almost washed me away.  But as promised, there is always a rainbow after every storm. Angels were sent my way during 2016. When I wanted to die, and I was crying harder than I ever had before in a tiny hospital chapel. Heavenly Father showed me that there was so so much to live for. During 3 of the hardest months of my life.  Where I was tho

Dear future husband: From a girl with chronic illness

I saw a blog that was a girls letter to her future husband. I honestly i just couldn't relate to it. So I decided to get real tonight and write my own version of it. I hope you can relate. And I hope it reminds you that you deserve true love. Someone who holds on to his end of in sickness in health. Who will love you for better for worse and for eternity. Fight for your fairytale and smile on.  Dear future husband : I'm so excited for you. I pray for you often. But in all honesty I fear you. I fear you won't be able to handle " all this". That you will love the lanky outgoing girl with a bright smile. But you won't be able to handle this monster of an invisible illness that I've carried with me most of my life.. I fear that you will love me at my best. But not to be able to handle me at my worst, and believe me there are going to be a lot of medical worst.  Some of the easier times will be hours  spent in Hospitals and Drs offices. There will be ti